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Document type
články
články
Document record
Source: BMČ - články
Title
Living with Systematic Lupus Erythematosus: A Profile of Young Female Patients / Z. Macejova, A. Madarasova Geckova, D. Husarova, M. Zarikova, Z. Kotradyova,
Author
Macejova, Zelmira
1st Department of Internal Medicine, Faculty of Medicine, Pavol Jozef Safarik University, Trieda SNP 1, 040 11 Kosice, Slovakia.

Madarásová Gecková, Andrea
Department of Health Psychology and Methodology Research, Medical Faculty, Pavol Jozef Safarik University, Trieda SNP 1, 040 11 Kosice, Slovakia. Olomouc University Social Health Institute, Palacky University in Olomouc, Univerzitni 22, 771 11 Olomouc, Czech Republic.

Husarova, Daniela
Department of Health Psychology and Methodology Research, Medical Faculty, Pavol Jozef Safarik University, Trieda SNP 1, 040 11 Kosice, Slovakia.

Záriková, Michaela
Artromac n.o., Rheumatology Outpatient Clinic, Toryska 1, 040 11 Kosice, Slovakia.

Kotradyova, Zuzana
1st Department of Internal Medicine, Faculty of Medicine, Pavol Jozef Safarik University, Trieda SNP 1, 040 11 Kosice, Slovakia.

Cited source
International journal of environmental research and public health. 2020, roč. 17, č. 4. ISSN: 1661-7827; 1660-4601 (elektronická verze).
Date of issue
2020
Language
angličtina
Country
Švýcarsko
Document type
články
DOI
Pubmed ID
Link
Record number
bmc20028494
Persistent link
English Abstract
The aim is to describe a profile of systemic lupus erythematosus (SLE) patient (socio-demographic data, course of disease, health status, and health care utilization, SLE impact on their life, SLE awareness) and to explore the association of patient's perspective with clinical indicators. Adult patients diagnosed by SLE were recruited in outpatient clinics (n = 76, 88% female, data collected in 2012-2016, Slovakia). The association of patients' perspective (SLE status, health complaints during remission, SLE impact, hospitalizations) with clinical activity (European Consensus Lupus Activity Measurement Index - ECLAM) and inflammatory marker (erythrocyte sedimentation rate - ESR) was assessed by t-test for independent variables and one-way ANOVA. Almost 17.9% of patients reported relapse. During remission, they mostly suffered fatigue and pain. Nearly all patients were on chronic pharmacological treatment. Most of the patients assessed SLE impact on their life as restrictive (56.9%) or very restrictive (23.1%). The most frequent source of information was their physician, and 67.2% reported that they have sufficient information about the disease and its treatment. Only the association of SLE status and hospitalization with clinical activity (ECLAM) and inflammatory marker (ESR) were confirmed. With recent improvements in diagnostics and therapy options, the prognosis for patients with SLE has improved. Nevertheless, the impact of this disease on all areas of a patient's life is extensive.
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